Jej biologickí rodičia ju opustili kvôli farbe očí. NAŠLA SI ALE NOVÚ RODINU, ktorá pre ňu…

Päťročné dievčatko, ktoré sa narodilo so vzácnou očnou poruchou, spôsobujúcou ukrutné bolesti, sa po odstránení zázračne uzdravilo.

MANDATORY BYLINE - PAIGE EWING PHOTOGRAPHY / CATERS NEWS - (PICTURED: -- MANDATORY BYLINES -- Mum Eryn in 2016 shortly after bringing back their daughter Primrose and sharing their battles with her health conditions - her piercing silver eyes showing strong, that would become deadly for her) - A five-year-old is adapting to life without sight after her ultra-rare syndrome meant her piercing silver eyes left her in agony and had to be removed. Primrose Austin was in horrendous pain due to the problems caused by a build-up of pressure, a retinal detachment in one eye while the other endured shrinking to half its size. Chris and Eryn, 34 and 35, from Buford, Georgia, US, adopted her from a Chinese orphanage three years ago, determined to give her a family in 2016. They were told she was blind from untreated congenital glaucoma, which caused her eyes to cloud over, and that she was potentially deaf. - SEE CATERS COPY

Primrose Austinová sa učí znova chodiť po tom, čo lekári odstránili očné tkanivo, ktoré ju držalo v nekonečnej agónii.

Malému dievčatku sa v jednom oku nahromadil tlak a došlo k oddeleniu sietnice, zatiaľ čo druhé sa zmenšilo na polovicu svojej veľkosti.

Adoptívna matka Eryn Austinová opisovala ich „život v neustálych nočných morách“, keď Primrose strávila 16 hodín denne plačom od bolesti.

PICS BY ERYN AUSTIN / CATERS NEWS - (PICTURED: -- MANDATORY BYLINES ON SOME IMAGES -- Eryn and Primrose, they had to teach her everything from holding her head to accepting affection as she had previously been in an orphanage) - A five-year-old is adapting to life without sight after her ultra-rare syndrome meant her piercing silver eyes left her in agony and had to be removed. Primrose Austin was in horrendous pain due to the problems caused by a build-up of pressure, a retinal detachment in one eye while the other endured shrinking to half its size. Chris and Eryn, 34 and 35, from Buford, Georgia, US, adopted her from a Chinese orphanage three years ago, determined to give her a family in 2016. They were told she was blind from untreated congenital glaucoma, which caused her eyes to cloud over, and that she was potentially deaf. - SEE CATERS COPY

Keď si ju Eryn a manžel Chris pred tromi rokmi adoptovali zo sirotinca v Číne, povedali im, že je slepá kvôli neliečenému vrodenému glaukómu. Preto boli jej oči striebornej farby a bolo im povedané, že pravdepodobne je aj hluchá.

V sirotinci bola zanedbávaná a nikdy sa nenaučila základné veci, ako napríklad držať hlavu hore alebo piť z fľaše.

PICS BY ERYN AUSTIN / CATERS NEWS - (PICTURED: -- MANDATORY BYLINES ON SOME IMAGES -- Primrose after being adopted and brought back to the US from China) - A five-year-old is adapting to life without sight after her ultra-rare syndrome meant her piercing silver eyes left her in agony and had to be removed. Primrose Austin was in horrendous pain due to the problems caused by a build-up of pressure, a retinal detachment in one eye while the other endured shrinking to half its size. Chris and Eryn, 34 and 35, from Buford, Georgia, US, adopted her from a Chinese orphanage three years ago, determined to give her a family in 2016. They were told she was blind from untreated congenital glaucoma, which caused her eyes to cloud over, and that she was potentially deaf. - SEE CATERS COPY

Eryn Austin našla jej fotku na Facebooku a netrvalo dlho, čo preletela pol sveta, aby spoznala svoju novú dcérku.

Primrose teraz vyrastá spolu s dvoma staršími deťmi.

Eryn povedala, že až 11 špecialistov bolo zmätených z toho, čo spôsobilo jej utrpenie.

Eryn dodala: „Bol to pre nás všetkých mučivý zážitok, oblieval ju pot a jej telo sa potýkalo s takou intenzívnou bolesťou, že jej nervový systém sa zbláznil.

„Ubližovala si tým, že nejedla a nepila, musel som jej tlačiť tekutiny do úst injekčnou striekačkou, aby bola hydratovaná.“

Magnetická rezonancia odhalila, že mala zriedkavý syndróm 6p25 – poruchu zodpovednú za rôzne očné komplikácie.

Zdravotníci jej odporučili, aby si dala odstrániť oči, a len o niekoľko týždňov neskôr sú ohromení jej zotavením.

PICS BY ERYN AUSTIN / CATERS NEWS - (PICTURED: -- MANDATORY BYLINES ON SOME IMAGES -- Primrose after her left eye was removed) - A five-year-old is adapting to life without sight after her ultra-rare syndrome meant her piercing silver eyes left her in agony and had to be removed. Primrose Austin was in horrendous pain due to the problems caused by a build-up of pressure, a retinal detachment in one eye while the other endured shrinking to half its size. Chris and Eryn, 34 and 35, from Buford, Georgia, US, adopted her from a Chinese orphanage three years ago, determined to give her a family in 2016. They were told she was blind from untreated congenital glaucoma, which caused her eyes to cloud over, and that she was potentially deaf. - SEE CATERS COPY

Nakoniec ani nebola úplne hluchá a v ušiach má hadičky, ktoré jej pomáhajú lepšie počuť.

Primrose teraz opäť začína chodiť a učí sa aj dotykovú formu posunkovej reči na komunikáciu.

„Bolo to srdcervúce rozhodnutie nechať jej odstrániť oči, ale bolo to 100% správne,“ povedala Eryn.

MANDATORY BYLINE - PAIGE EWING PHOTOGRAPHY / CATERS NEWS - (PICTURED: -- MANDATORY BYLINES -- Dad Chris with Primrose in 2016 after adopting her and bringing her back to the USA) - A five-year-old is adapting to life without sight after her ultra-rare syndrome meant her piercing silver eyes left her in agony and had to be removed. Primrose Austin was in horrendous pain due to the problems caused by a build-up of pressure, a retinal detachment in one eye while the other endured shrinking to half its size. Chris and Eryn, 34 and 35, from Buford, Georgia, US, adopted her from a Chinese orphanage three years ago, determined to give her a family in 2016. They were told she was blind from untreated congenital glaucoma, which caused her eyes to cloud over, and that she was potentially deaf. - SEE CATERS COPY

„Bol to zázrak, dva dni po tom, čo sa prvýkrát po mesiacoch postavila, usmievala sa a robila pokroky aj v iných oblastiach.“

Dodala: „Deti ju volajú „monštrum“ a s krikom a plačom utekajú. Ale je krásna, aj keď jej oči vyzerajú inak.‘

Eryn dodala: „Teraz začína komunikovať novým a iným spôsobom. Vždy bude musieť pristupovať k životu inak, no my sme  aspoň odstránili zdroj jej bolesti.

„Ak nebude rozprávať, nájdeme iné spôsoby, ako s ňou komunikovať, naučíme ju posunkovú reč alebo prídeme na niečo iné.“

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zdroj: metro.co.uk

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